With that being said, I'm going to take the time to blog about a condition other than infertility that I've been dealing with.
Since I was about 16 years old, I've had a condition called Interstitial Cystitis, although I didn't always know that's what it was. I've only been medically diagnosed with it for a little under 2 years but that's because it's very hard to diagnose according to my Dr.
First I'll give you the medical definition for IC, and then I'll give you what it REALLY feels like.
Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) — also called painful bladder syndrome — is a chronic condition in which you experience bladder pressure, bladder pain and sometimes pelvic pain, ranging from mild discomfort to severe pain.
Interstitial cystitis signs and symptoms include:
- Pain in your pelvis or between the vagina and anus in women or between the scrotum and anus in men (perineum).
- Chronic pelvic pain.
- A persistent, urgent need to urinate.
- Frequent urination, often of small amounts, throughout the day and night. People with severe interstitial cystitis may urinate as often as 60 times a day.
- Pain or discomfort while the bladder fills and relief after urinating.
- Pain during sexual intercourse.
Now let me tell you what it REALLY feels like.....
Imagine if you will that you have to use the bathroom. No big deal, most people are in and out in a couple minutes, tops. But not you. No, you have interstitial cystitis which makes bathroom trips a little more interesting for you.
(Warning: Graphic Content)
When a person pees, it comes out of the urethra. The urethra is basically a tube that allows the urine to travel from the bladder to the outside of your body. Now for a normal person, the urine flows steady, strong, and quick. Wait...did you forget already that you have IC?? These rules don't apply to you.
When YOU pee, imagine that tube is lined with needles. Also, the urine you're passing is really shards of glass. That is not an exaggeration. You literally feel like you are trying to push out chunks of glass and needles. Now if that's not bad enough, don't forget that you can't pee steady and strong like a normal person. Your urine will come in quick little spurts of sharp pain. (Imagine turning on a faucet of water and placing your thumb against it to block the water. Now let it flow. Keep doing that repeatedly as fast as you can.)
Now that you've finished peeing, let's say you're at work and you go back and sit at your desk (first wash your hands, that's gross!). As soon as you sit down, your hoo-ha starts burning like it is literally ON FIRE! Remember the needles and glass you peed out earlier? Those are now replaced with flames of fire that will not stop. The pain is so uncomfortable that you can't sit still. The only thing you can do is go BACK to the bathroom to pee again. Only this time, you can only pee 2 or 3 little spurts and that's it. You go back to your desk, and the burning persists. Now repeat those steps over and over for roughly 30min to 1 hour. Every. Single. Time. Welcome to the wonderful world of Interstitial Cystitis.
I've been doing all of this since I was 16 years old. I've seen multiple Dr's and had multiple opinions on what they thought was wrong with me. Of course they're quick to suggest a urinary tract infection (similar symptoms), but I knew better. Eventually I just learned to deal with the pain (I didn't have insurance and couldn't afford the Dr. visits). The beginning of last year, I got a referral from my gynecologist to go see a urogynecologist named Dr. Marc Ashby. Upon my first meeting with him, he said he was pretty sure I had IC. To be certain however, I would need to have a procedure done called a "cystoscopy with hydrodistention" Long story short, I was placed under anesthesia, and then my bladder was filled with as much fluid as it could possibly hold. It was left that way for a few minutes, and then was drained.
When a regular bladder fills with urine, the person urinates, and the bladder goes back to normal. With my bladder, after I pee, my bladder shrinks back to normal except it's left with lots and lots of little "raw spots" that when more urine touches it, it burns like crazy. (remember the fire feeling??) Dr's have no idea why this happens, nor do they really know how to treat it. For example, I was given 4 options.
1. Go on a strict diet which eliminates all sorts of foods and drinks and see if that will maintain the pain.
2. Go on anti-depressant medications. Apparently they calm the body which will calm the bladder. The dr. said they would hope to give me a low enough dose to avoid the weight gain and "loopiness".
3. Go on narcotic nerve medications which will numb my body, hopefully numbing my bladder.
4. I could come in every week for 6 weeks straight and have a catheter inserted and have my bladder coated with medication.
Needless to say, I took option 1. Unfortunately, there's really no way of figuring out which foods trigger the IC. So the only option is to deal with the pain. At least I know I haven't been crazy these last 8+yrs and that I have an honest to goodness condition and it's not in my head. I just wish it was something easier to fix!!!!!
So although my PCOS is the condition I talk about the most due to it's aiding in my infertility, now you know that I have a different condition that is more physically painful than any of my others and is just an all around pain in the butt. Or should I say Hoo-Ha???? LOL!!!! At least I can still keep my sense of humor!







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